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Kerry mother describes transformative effects of CF drug on her son

Mar 22, 2023 13:13
By radiokerrynews
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Kerry mother describes transformative effects of CF drug on her son

A Kerry mother has described the transformative effects a drug to treat cystic fibrosis has had on her son.

Laura-Jane Nealon from Lixnaw says the Kaftrio drug has changed the life of 12-year-old Evan.

Ms Nealon was reacting to the news the HSE has approved this drug for use by children aged six to eleven.

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The announcement was made following talks with Kaftrio's manufacturer, Vertex.

There had been a pricing dispute between the HSE and manufacturer, which meant young children had fallen outside the eligibility criteria to access it.

Laura-Jane Nealon describes the impact Kaftrio had on Evan when he started taking it a few days after his 12th birthday.

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