A Kerry mother whose six-year-old daughter suffers from Cystic Fibrosis has written an open letter to the Health Minister on Orkambi.
Marisa Reidy says when her daughter Hanna is older, she would be a suitable candidate for the drug, which has been described as a game-changer.
Kerry has one of the highest instances of Cystic Fibrosis in the country and most sufferers have the strain of the disease that responds to Orkambi.
The drug costs around €158,000 per patient annually, but the National Centre for Pharmacoeconomics recommended that it shouldn’t be funded by the HSE on cost effectiveness grounds.
Marisa Reidy has written an open letter to Health Minister Simon Harris, which has gone viral online, asking him to approve the life-saving drug, but she’s still awaiting a reply.